Category: Living with Complex Chronic Illness, Disability, and AuDHD

  • The Last Walk

    The Last Walk

    The latest in my digital self-portraits and landscape series’. It depicts me walking in my doctoral regalia in the day of commencement. The walk (and plants/building in the background) was a familiar and wheelchair accessible route from the nearest parking garage to my office/classroom building.

  • Mask Week of Action 2023

    Mask Week of Action 2023

    Masks belong in healthcare because Covid is not over, Covid is airborne, and patients deserve to be safe. Last week we called on medical professionals to remember why they joined the profession in the first place, the oath they took to “Do No Harm”, and that they CAN choose to be kind and protect their…

  • Household Chores with Ehlers-Danlos and MCAS Means Getting Creative

    Household Chores with Ehlers-Danlos and MCAS Means Getting Creative

    The one downside is the spray bottle that comes with the Force of Nature machine–it absolutely soaks paper-based packaging, so…most packaging. I decided to buy a misting bottle* to see if it would help with the soaking. The original spray bottle is also tough on my finger joints so I would get about three sprays…

  • Is your Accommodation Policy Sending the Right Message to Disabled Students?

    Is your Accommodation Policy Sending the Right Message to Disabled Students?

    It is common knowledge in the disabled community that “accommodations” for disability in higher eduction are often unreasonable, putting immense burden on disabled students to navigate a class environment that does not meet their access needs. When professors fail to provide reasonable accommodations, they are rarely forced to change course–honestly, you’re lucky if your disability…

  • Different Aids for Different Days: What I mean when I say I “walk and roll”

    Different Aids for Different Days: What I mean when I say I “walk and roll”

    These are the mobility aids I have acquired over the years. I give this info because they have served me well, not because they are the best product for every person, best products, least expensive products, etc. They are simply the products I have found work for me and were available at the time I…

  • The Breaking Period: Follow-Up

    The Breaking Period: Follow-Up

    Just over a week ago, I wrote about the uniquely horrified and yet unsurprised understanding held by disabled people who predicted this watching the pandemic “breaking point” (aka breaking period). Early this week, I got news that the breaking period had graced our close friend group—and it was anything but graceful. The breaking period crashed…

  • The Breaking Period: View from My Wheelchair

    The Breaking Period: View from My Wheelchair

    To everyone who has ever had to say “no, I really can’t use the stairs.” I don’t know what our path forward is, but I am secure knowing our community has only gotten tighter during COVID.

  • ”Are You Sure You Shouldn’t Extend Another Semester?”

    ”Are You Sure You Shouldn’t Extend Another Semester?”

    Grappling with the disappointments of graduate school as a disabled student during the COVID-19 pandemic As we slide into our third summer dealing with COVID-19, I cannot stop thinking about privileged people’s approach to problem solving. I find myself surrounded by people who seem to seriously believe that if they ignore the problem, it will…

  • Navigating higher education as someone at high risk for COVID-19 hospitalization/death #WeAreHopkinsToo

    Navigating higher education as someone at high risk for COVID-19 hospitalization/death #WeAreHopkinsToo

    Image DescriptionDigital painting of a white woman with shoulder-length red hair sitting in front of a laptop computer in two poses. On the left, the woman looks at the computer screen that reads “you’re invited! Teaching awards. Masks OPTIONAL.” On the right, the woman glares to the side, her whole face is visible and she…

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